Privilege & MS

My MS started when I was 40. I had an established career, a comfortable income, savings, and excellent benefits. I was able to quickly and effectively get medical treatment, a diagnosis, and fight MS. If this had happened in my early 20's, when I was broke and uninsured, I would have been screwed. If it had happened in my 30's, when I was self-employed, I don't know how I would have survived. If it had happened even a few years ago, when I was living paycheck to paycheck, digging out of a post-divorce financial hole, and paying for full-time child care, it would have devastated me financially. In my 40's, I was able to fight MS.

Injections

I was anxious, but excited, to start the injections. I left work around lunchtime for injection training with a nurse. I drove to the doctor's office, parked, checked in, and was called back quickly. She asked if I had the injection with me. Um...no. No one told me to bring them. I guess that seems… Continue reading Injections

Should I Start Treatment?

I did not meet diagnostic criteria for an MS diagnosis, but I had optic neuritis, brain lesions, and Oligoclonal bands in my spinal fluid, all of which are consistent with MS. And, everything else had been ruled out. For women my age with optic neuritis and brain lesions, there is a 72% chance of developing… Continue reading Should I Start Treatment?

Steroids

When I left the eye doctor, I was in tears. I couldn't see out of my right eye. I knew it was neurological, but I didn't know what was wrong with me. The eye doctor told me to go to urgent care for a neurological exam, steroids, and an MRI. I was panicking, imagining the… Continue reading Steroids